Our Yahoo is acting up and I know our friends are wondering about Macey and what happened yesterday.
FURST and most important all your prayers and good words uplifted Macey and us in every way possible. She laughed and laughed.
They were unable to get the MRI done though. First the sedation did not work well enough and she coughed a few times, thus making the picture of the first MRI unreadable....it caused a domino effect as to the timing of the rest also, they even tried to do one with no sedation and she tried real hard not to move but it still did not work. Because they are booked so solid, we could not even wait and come back in a few hours. We ended up waiting till after 1:00 in the MRI lab to see if they would just admit her.
The insurance would not admit her because two MRI's in one day with no diagnosis yet, or no actual DR. is a no-no. Yep we found out that at the moment, she has no dr. The cardio guy is done with his job and the kidney girl is done with her job, so macey is basically floating around in their system without a home.
So we went back up to pediatric specialty clinic and waited for the kidney girl to come back to see if she could help. Another 2 hour wait. Poor Macey had not eaten since midnight or drank. We could not give her anything just in case they could redo the MRI. she was the best little sport.
Finally, the kidney dr. decided to send her home to have an MRI done here, and our local clinic would read it, along with Iowa City.....after they see something (or don't see something) then they will know who to send her to next.
The new thing is now her blood work. Since two weeks ago she is anemic. Another new thing she never has been. Macey eats very well, and that has never been an issue. So in the 8 weeks that this first started she has a heart murmur, wonky ekg, blood in her urine, anemic, big foot and calf.....we are beyond worried. Just beyond it.
So on Tuesday she has another MRI, but thankfully just a few miles from her home. No long traveling. We are trying so hard to think of the simple things it could be, but we can't find them anymore, and now our minds are traveling to the darker side.
Today at work all I could do is cry and cry. My boss didn't know what to say to me, so he just ran out the door to Court. (llolol...) Oh yeah, as far as our election went he lost the race, so come January I no longer will be the assistant secretary....but money is replaceable....people are not.
We will be answering all your wonderful blogs and comments you left for us yesterday, in time. We will also let you know things as we find out.