Tuesday, March 24, 2015


Thank you for all your positive and loving comments yesterday.  Although they brought tears to my eyes, they also reinforced how powerful blogville is when one of their families are hurting. 

Last night I went over to see Macey and she read her first book to me ever by Dr. Seuss.  It was a long book...lol.....and she struggled through some of the words, but she did a great job.  She was very proud of herself, and I was her.

I rubbed her leg and foot and we talked about how different her toes looked on her swollen foot...two of them were so swollen they almost looked like one.  She laughed and said, "look at my weird toes grandma!"   I jokingly said, " as long as when you wake up in the morning they are not yellow and you don't go quack quack then you are just fine...."   She thought that was funny, I had a hard time swallowing.

Our next step is on the 13th she will have two specific tests mapping out her lymphatic system, and showing where the damage is.  This will also show if there is time for any specific treatments or if surgery is needed right away.  We think because of the way insurances are nowdays they will require some type of treatment first.  One in 6,000 children have primary lymphedema....more girls than boys.  As one of you said, hopefully as Macey grows up research will get a better handle on it, and they will have even more ways of treating it.  (her dr. yesterday actually thought she had Cancer before and that is how she developed lymphedema, because primary is so unusual)

On another note some of you know my mom found out a few months ago that she has breast cancer.  She is 79.  After all the tests, we did find out if you had to have it, the type she has and where it is has a good prognosis.  She started her treatments about one month ago, 6 months of hormones, several biopsies during those 6 months, then a lumpectomy and then 33 weeks of radiation.   They put her on a pretty aggressive form of the hormone so she is starting to have some rough side effects, but is trying her best to deal with it.  Yesterday was her first biopsy after beginning the hormones and the tumor had shrunk 1/2 cm.  We were all celebrating as you can imagine!!!!  The dr. said it may not shrink that much each month, but it will shrink......oh happiness.

My favor is this...I am always telling her about my blog, and my friends and the four leggers and since her and my Dad live out in the hills and dips of Southeastern Iowa I wondered if anyone would like to send her a card.  She does not have any friends living anymore, and has Dad and us kids.  I will never forget how your cards made my friend Cindy feel, and she still talks about them, and looks at them.  If you would like to you can send me an email and I will give you their address.  Please do not worry about it if you cannot.  simpson_longatyahoodotcom.

Well, it is girls day out and I know my girls are really to go and have some fun.  I think Maggie and her BFF have a few things planned this week, and then at the end of this month will unveil just who that secret friend is.  They sure have been having a great time.



  1. Hang tough furends!

    Lily Belle & Muffin
    Mommy just sent you an e-mail.

  2. I had to swallow my tears too as I read about the toes and the first book she reads to you.... it's great that she picked a Dr. Seuss book :o)
    I will write a card to your mom.... and I hope it helps a little to know there are people who cross their fingers and who keep her in their thoughts.
    easy rider

  3. Deb we missed yesterday's post but have caught up!!
    Sending lots of prayers, love and hugs to you all! At least you have answers and a plan of action...now you have some POWER over the disease and we know you will knock it to the ground.

    Mom will be emailing you soon.
    Love and hugs madi and mom

  4. Big luffs and hugs for us to all of you.
    All seems to be moving in a positive direction, stay strong and blogsville will be celebrating happy endings before you know it!
    Loves and licky kisses
    Princess Leah xxx

  5. Sent you and email and of course we will send a card and one to Macey too if you supplies the details. Have a terrific Tuesday.
    Best wishes Molly

  6. So much happening over there. You are always in our thoughts and prayers, even when we miss reading and commenting on blogs (which we have been MIA for the last couple of weeks).
    Cairn cuddles,

  7. One day at a time and each day a little better :)

  8. Mom's sending you an email. Anything we can do to provide a little brightness in your world is there when you need it.

    Abby the Lab

  9. You are a wonderful example of looking for the positive in things. And on another note, we are wondering who that BFF is!

    Your Pals,

    Murphy & Stanley

  10. Oh, what good news for both Macey and your mom, I'm so glad. Keep your chins up!

  11. We're keeping our paws crossed and KNOW that everything will work out now for your family!!

  12. Good news about your mom.Life is so full of these ying yang moments, huh?
    Love Noodles

  13. OH her First Ever Book!! THAT is a grand thing to celebrate... We have our POTP coming fur Macey and fur your mom.

  14. We're always happy to help....

    Tell Macey that we're extremely proud of HER, too! Dr Seuss isn't a baby book, they have some hard words!

  15. Crikey Mum will be happy to send a card to your Mom. What a wonderful Grandma you are to Macey. No wonder she laughed at the quack, quack, duck feet comment and no wonder you had a hard time swallowing at her response.

  16. Macey is so lucky to have such a wonderful and loving grandma. We are keeping our paws crossed for all of you.

  17. Even the tiniest stip forward is encouraging. Yesterday a diagnosis and a plan for Macy, and today some encouraging news about your Mom. Let's keep it going now. All paws crossed and lots of prayers.

    Woos - Phantom, Ciara, and Lightning and Mom

  18. Great news for your moms treatment-- is under way! And it shrunk already-- that is wonderful.

    And yes,, as long as Macey does not start quacking,, she will be fine.
    The commenter who mentioned new techniques are being created every day- yes,, they are,

  19. You deserve lots of positive news after all you've been through. We'd be glad to send your mother a card.