Thank you for all your positive and loving comments yesterday. Although they brought tears to my eyes, they also reinforced how powerful blogville is when one of their families are hurting.
Last night I went over to see Macey and she read her first book to me ever by Dr. Seuss. It was a long book...lol.....and she struggled through some of the words, but she did a great job. She was very proud of herself, and I was her.
I rubbed her leg and foot and we talked about how different her toes looked on her swollen foot...two of them were so swollen they almost looked like one. She laughed and said, "look at my weird toes grandma!" I jokingly said, " as long as when you wake up in the morning they are not yellow and you don't go quack quack then you are just fine...." She thought that was funny, I had a hard time swallowing.
Our next step is on the 13th she will have two specific tests mapping out her lymphatic system, and showing where the damage is. This will also show if there is time for any specific treatments or if surgery is needed right away. We think because of the way insurances are nowdays they will require some type of treatment first. One in 6,000 children have primary lymphedema....more girls than boys. As one of you said, hopefully as Macey grows up research will get a better handle on it, and they will have even more ways of treating it. (her dr. yesterday actually thought she had Cancer before and that is how she developed lymphedema, because primary is so unusual)
On another note some of you know my mom found out a few months ago that she has breast cancer. She is 79. After all the tests, we did find out if you had to have it, the type she has and where it is has a good prognosis. She started her treatments about one month ago, 6 months of hormones, several biopsies during those 6 months, then a lumpectomy and then 33 weeks of radiation. They put her on a pretty aggressive form of the hormone so she is starting to have some rough side effects, but is trying her best to deal with it. Yesterday was her first biopsy after beginning the hormones and the tumor had shrunk 1/2 cm. We were all celebrating as you can imagine!!!! The dr. said it may not shrink that much each month, but it will shrink......oh happiness.
My favor is this...I am always telling her about my blog, and my friends and the four leggers and since her and my Dad live out in the hills and dips of Southeastern Iowa I wondered if anyone would like to send her a card. She does not have any friends living anymore, and has Dad and us kids. I will never forget how your cards made my friend Cindy feel, and she still talks about them, and looks at them. If you would like to you can send me an email and I will give you their address. Please do not worry about it if you cannot. simpson_longatyahoodotcom.
Well, it is girls day out and I know my girls are really to go and have some fun. I think Maggie and her BFF have a few things planned this week, and then at the end of this month will unveil just who that secret friend is. They sure have been having a great time.