Tuesday, January 27, 2015

UPDATE ON MACEY

WE thought we were all done with the DR and MACEY but in our hearts we KNEW that we still had some roads to travel.  THIS is the 6th month that her leg and foot are still swollen.  Today she met with the infectious disease dr. at Blanks Children Hospital and he admitted they were more than stumped....they took more blood to see if anything had changed as far as the bacteria from "Cat Scratch..." and he told them that she actually could have gotten that bacteria anytime in her 6 years, and it was very very possible it has nothing to do with her foot and leg.  He did send her home with 5 days of antibiotics....I guess even they are willing to try anything now.  Maybe it will be that easy of a fix.

SO they told her mom and dad that the University and Blanks did not have the type of lymph dr. that Macey needs, and they are now checking for that endangered species of a DR. who is smart enough to figure out this little girl.  They mentioned Mayo Clinic in Rochester Minnesota or the Children's Hospital in Kanas City KS.  I wonder why there are no smart dr's closer to us.

We really just want Macey better and for the butterflies that live in all our stomachs to go away.  We want to stop thinking negative dark thoughts and what we really really want is for our Macey to be well again.  WE just don't know what else to say.

Deb and the pugs



28 comments:

  1. We are praying for Macey, but bring her to Children's Mercy here in Kansas City, Missouri... they are THE BEST!!!!

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  2. We all want that little girl better. So disheartening not to be able to find an appropriate doctor or get a definitive diagnosis and prognosis. Hope the antibiotics help....it would be wonderful.

    Hugs to all of you.

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  3. I thought the 'Drs' were actually getting somewhere! You must be so frustrated, how can there not be a specialist close enough for you to see IMMEDIATELY! Gosh, I'm getting so wound up, it must be dreadful for you. Lots and lots of loves and hugs from us. (wish the magic wand on Mum's desk really could do magic!)
    Loves and licky kisses
    Princess Leah xxx

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  4. OH Sweet little Macey.... bless her precious heart ♥. She has been through SO much and STILL has no clear answers...
    We guess we should all take a clue from HER and just SMILE a MILE Wide... and have some Good Laughs with her... Laughter IS a good medicine...
    WE have our Paws Crossed that this antibiotic will have an effect... POTP fur our Bright and Brave Girrrrl.

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  5. Im so sorry to hear that Macey still has this problem, but I really have a lot of hope that at the big hospitals mentioned they can fix it quickly ,they have probably seen a ton of stuff there

    retro rover
    PS thank you for the lovely card

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  6. Gosh,, we thought she went to the best Childrens Hospital near you!!!! the one that looked like a castle!!
    Was it Banks Childrens Hosp? The one that did all that testing and finds nothing? Someone must know.!!!
    love
    tweedles

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  7. Oh I see,,,, Blanks said they had no answers!!! Detectives is what is needed!!
    love
    tweedles

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  8. We are sorry to read that little Macy and her family are still having to deal with this - we know she is a little young but has she been checked for Lymphedema ???

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  9. Somewhere there is an answer and we hope you find it soon! Purrs and tail wags.

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  10. We'll keep the prayers going for Macey!

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  11. Well...hope they find tha missing species quickly!

    The Mad Scots

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  12. Oh Macey. That smile is just wonderful. We KNOW it's beclaws she is loved to the moon and back by her family AND by people all around the whole wide world. We have paws crossed the antibiotics work too. Sending you ALL our slobbery love.
    NO WORRIES (especially for Macey) and love,
    Stella and Rory x x

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  13. We are sending tons and tons of prayers and POTP that they will find a smart doctor close to Macey's house....
    Hugs,
    Mama Beth,
    Dory, Jakey, Arty & Bilbo

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  14. DRATS!!!!!! I were SO hoping that that darn leg was better :( Have they thought about sending her to a physical therapist that specializes in lymphadema? That is what that had my Mom do after her breast cancer surgery to help with the lymphadema she developed. Just a thought, but I wanted to share.
    Kelly

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  15. Thanks for the update!
    We're keeping sweet Macey in our purrs and purrayers. This must be so hard on all of you.
    Sending >>smooches<< the woofies, too.

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  16. We are praying for her and so hope they sort this out soon. Our thoughts are with you. Big hugs to all.
    Much love Molly

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  17. I hope so much that you will find the smartest Dr. ever, who can really help Macey and I hope so much that this odyssey finds a happy end soon. I cross my paws and I send all my hope your way for a happy Macey.
    Easy Rider

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  18. Crikey ..... Mum and I were hoping for better news than this. We think of little Macey all the time. Such a worry for you all. Surely someone can come up with some answers. Big hugs to all of you.

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  19. We will be thinking about Macey and hoping she gets better soon! We cannot imagine how frustrating that is! We'll be sure to post a few funny doggie pictures on our blog today so Macy can have a few laughs.

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  20. I guess we get so used to the amazing things we can do medically that we forget how complex our bodies actually are. We can only imagine how frustrating this is for sweet Macey and her family! We continue to pray that a successful treatment plan can be developed and she can get healthy and back to being a little girl with no worries.

    Your Pals,

    MURPHY AND STANLEY

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  21. It's so skeery when even the doctors can't figure things out! We're keeping all our paws crossed tight for Macey. I know they'll figure something out soon!

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  22. Ugh, the waiting for answers must be so hard. I hope you find someone who can give you some answers soon! Hang in there!! We are continuing to send good thoughts!

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  23. Oh gosh, I so hope there is better news soon! The hardest thing is not knowing. I hope you find the best doc out there who can figure it all out and get Macey some relief! Hugs and cool healing noses your way!

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  24. I'm glad to have an update on Macey. I keep her in my daily prayers. I guess I'm just going to have to pray harder.

    Aroo to you,
    Sully

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  25. I am sorry to hear that they haven't solved the mystery of Macey. I really hope they do soon. POTP

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  26. It is sad that the doctors sometimes are so far away from where we live. I keep Macey in my prayers every night.
    Sweet William The Scot

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  27. I'm sorry that the answers for sweet Macey have yet to be found. Continued prayers for strength and guidance to help solve this mystery....

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