Today was Macey's first day of having compression pump therapy with her physical therapist. That brown wrap looks 20 times bigger than her leg, and the pump is then set on a level to help her lose the excess fluid. My daughter sent me the picture and after looking at it, I realized it made my stomach hurt. I did not want this to be one of her FIRST's in her six year old life.
The hospital was able to buy the pump through the Susan B. Koman foundation to help with lymphedema sometimes experienced by breast cancer survivors. It cost way back then $10,000.00 I do not think they were thinking a 6 year old would need it. We are glad it is available. Trying to smile.
Tonight will be Macey's first night of wearing this special three layer wrap on her leg to bed. She is to wear it every night. And then in the morning her compression hose during the day. Another first.
Later, Kylei sent me a connection to another blogger who is in her 20's and has had lymphedema since she was 13. I read a few of her posts, and my stomach hurt worse. She talked about dating, and worrying, and infections, and shaving her legs, and everything that we do everyday without even thinking of a consequence...a dire consequence........stomach hurting.
When Butch and I first got together we used to comment after we had experienced something new together "well this is our first" and it was always a positive thing. Today not so much.
One good thing about being a blogger is you can say it how you feel. Either people will read it and go on, or they will comment ....they may even tell you to straighten up and stop feeling so bad, ....I do tell myself that already, but my stomach still hurts. And feels sad. Not so brave.
Macey is very brave at 6......I want to believe she will continue with that braveness even though the grownups may struggle. Cos she will have a lot of firsts around a lot of corners ....I believe she will handle them with grace.
After I post this I am going to send an email to a blogging friend who's daughter is going through a much different battle, just to let her know I am thinking of them again today, ....that's what we do here in Blogville isn't it, even when our own stomach hurts.