WORDY WEDNESDAY-UPDATE

One is grumpy---- one is not.   I would have been grumpy after a day of MORE needle sticks.  Before I go any further in my update this is what Macey's momma Kylei had to say on her facebook page...."Macey said thank you so much to all my moms blog friends for her gifts and cards it is beyond sweet."  Yesterday Macey even received a package from Angel Pip and his momma and her granddaughter.  People everywhere are thinking of our Macey.


Okay so they go to Blanks Children Hospital.  Momma said a big prayer the night before cos she is not so good about driving in rush hour traffic on the interstates around the capital of our state.  Ugh...Plus it had snowed some the night before so the roads were still a little icy in places...double ugh ugh......they had to leave in the early morning hours and it was only 7 above.......we stayed home in our warm beds and pj's.....

They arrive safely barely on time, but safely and the hospital looks pretty magical.  It is painted inside like a wonderful place in the old time Grimms fairytales books, a little of german magic etc.....Macey and Kenna thought it was pretty cool.  There were wishing wells, gifts shops, and food places .....in hindsight they should have stopped and thrown about $20 worth of coins in that wishing well instead they hurried by it!!

The staff were very friendly and because it was Macey's first time to visit the head doctor at the Diagnostic Clinic they had to ask her Momma, Kylei about 500 of the very same questions she had already answered 500 times ago.  Macey and her sister mostly bounced off the walls, and our Momma forgot to breathe several times cos hers was anxious. (she hid it well though)

So first Macey was weighted and measured and her leg and foot was measured.  Then two ladies came in and talked about her health history and the gazillion tests she had already had.  Then finally the GREAT OZ himself came to see her.  He must have been about 100 years old but Mom said everyone liked him right away.  Mom was a little worried though when she did not see his bag of magic tricks or at least a magic hat.  Instead we saw a stethoscope ....um.......

He shared that it was very rare for a child to only have one swollen leg and foot.  He usually sees children with two swollen legs and that is usually due to a heart or kidney issue.  WELL we reminded him Macey is trying for the Guinness Book of Records....so what did he expect??  He asked his own special set of a gazillion questions........and then he started to make a plan.

OUR mom is a list maker and when she makes a list she starts IMMEDIATELY to mark through each item.  She does not put it up until tomorrow.   WELL we found out real FAST that is NOT how Dr. Elliot does his list.  NOSIREEE.....He makes a plan and then makes another plan and throws  in a few more to go with it.

Mom suggested he start on it before lunchtime....but of course that was impossible because the ultrasound machine was booked until the 12th of never.  On that note Mom could have applied for a job on the set of  Thomas the Train cos of the smoke coming from her ears.....

Dr. Elliot wants an ultrasound done to see if there is something blocking the lymph nodes in Maceys groin, or stomach from working right.  He also ordered all kinds of new blood work  we had never heard of just in case her Momma had forgotten to tell him Macey had been on an expedition to South America and got bitten by a giant flying insect. 

So we got all the bloodwork done, but the ultrasound will be scheduled down here in our own little village.  Hopefully this week.  If that is okay, then I guess we will make a new list with Dr. Elliot.

One thing we have all learned in these 11 weeks is when it comes to medical mysteries, nothing is fast, there is no magic hat, or wand just waiting around to tell you the answer.  WE do think the magic lies within our family though and how we have tried to pull it all together, it lies within our church families, and our blogville families.  Perhaps we cannot final the true answer quickly but between us all we will at least pave the yellow brick road with loved and caring.

Stella Rose and her Momma